Foundation Topic 3 — Human Rights Model of Disability

In the previous topics, you explored fundamental human-rights principles and the international frameworks that support them, particularly the United Nations Convention on the Rights of Persons with Disabilities (CRPD).

We now bring those ideas more directly into disability practice.

How professionals understand disability matters.

The model of disability a practitioner consciously or unconsciously uses can influence:

  • what they assess;
  • what they consider to be the “problem”;
  • whose expertise they prioritise;
  • what interventions they recommend;
  • how they understand risk and independence;
  • how they communicate with the person;
  • whether they focus upon changing the individual or changing the environment;
  • how they approach assistance-animal recommendations; and
  • how much choice and control the person is given.

Occupational Therapists will already have encountered different ways of conceptualising disability, health, function and participation.

AAOT asks you to consider these perspectives specifically in the context of assistance-animal practice.

This is important because assistance animals can easily be understood through a narrow deficit-based lens:

The person cannot do X, so the animal does X for them.

Sometimes that description is functionally accurate, but it is incomplete.

A rights-based approach asks broader questions:

What does the person want to do?

What barriers are interfering with participation?

What role could an assistance animal play?

What other supports or environmental changes may be relevant?

What does the person choose?

How can the person’s rights, autonomy and participation be supported while also protecting the animal’s welfare?

The Human Rights Model of Disability provides an important framework for thinking about these questions.

Models of Disability Shape Practice

A model is a way of conceptualising or understanding something.

Models of disability influence how societies, governments, organisations and professionals understand disability and respond to people with disability.

Different models can lead to very different responses to exactly the same situation.

Consider a person who cannot independently enter their workplace because the only entrance requires climbing stairs.

One approach might focus primarily upon the person’s inability to climb the stairs.

Another might focus upon the building:

Why is the workplace inaccessible?

A third might consider both the person’s functional abilities and environmental characteristics.

A human-rights perspective additionally asks:

What rights, opportunities and participation are affected by this barrier, and what responsibilities exist to address it?

Understanding these differences is important because professional language is not neutral.

The way we define the problem influences the solutions we consider possible.

The Medical Model of Disability

The medical model broadly locates disability within the individual.

The person’s impairment, illness, injury or condition becomes the primary explanation for the difficulties they experience.

From this perspective, professional intervention may focus upon:

  • diagnosis;
  • treatment;
  • rehabilitation;
  • symptom management;
  • restoring function;
  • compensating for lost function; or
  • helping the person adapt to impairment.

Medical knowledge is clearly important.

An AAOT cannot simply ignore:

  • physical function;
  • cognition;
  • sensory function;
  • fatigue;
  • pain;
  • mobility;
  • mental health;
  • functional capacity;
  • health conditions; or
  • the person’s clinical needs.

The problem arises when the person’s impairment becomes the only explanation for restricted participation.

Consider:

Maria cannot enter the café because she uses a wheelchair.

A purely individualised interpretation locates the problem in Maria’s mobility.

But what if the café has three steps and no accessible entrance?

The problem can also be described as:

Maria cannot enter because the environment is inaccessible.

The impairment has not changed.

The understanding of the barrier has.

The Social Model of Disability

The social model of disability challenged the idea that disability should be understood solely as a problem located within the individual.

It distinguishes between impairment and the disabling barriers created by society and the environment.

These barriers may include:

  • inaccessible buildings;
  • inaccessible transport;
  • discriminatory attitudes;
  • inflexible systems;
  • inaccessible information;
  • exclusionary policies;
  • communication barriers;
  • lack of reasonable adjustment; and
  • social expectations about what people with disability can or should do.

This was a major shift in disability thinking.

Instead of asking only:

What is wrong with this person?

the social model encourages us to ask:

What is happening around this person that prevents participation?

This has obvious relevance to Occupational Therapy.

It also has substantial relevance to assistance animals.

Applying the Social Model to Assistance Animals

Imagine a person with disability uses an assistance animal to participate independently in their community.

They attempt to enter a shop and are refused because staff believe that “pets aren’t allowed”.

Where is the disability-related barrier?

The person’s impairment has not suddenly changed when they reach the shop entrance.

The assistance animal has not necessarily stopped performing its role.

The barrier may instead be created by:

  • staff knowledge;
  • organisational policy;
  • attitudes;
  • misunderstanding of assistance animals;
  • inaccessible verification processes; or
  • failure to consider the person’s circumstances.

From this perspective, the intervention should not automatically be:

How can we help the disabled person cope better with being refused?

It might also be:

How can the environmental or systemic barrier be addressed?

That could involve education, advocacy, reasonable adjustment, documentation, policy development or another intervention directed at the environment rather than the person.

The Limits of Any Single Model

Models can help us understand disability, but they can also oversimplify people’s experiences if applied rigidly.

For example, acknowledging social barriers does not mean that impairment itself never creates difficulty.

A person experiencing severe pain, seizures, fatigue, sensory loss or another impairment may experience genuine effects even in an exceptionally accessible environment.

Similarly, recognising biological or functional consequences of impairment does not mean that disability should be understood entirely as an individual medical problem.

For AAOT practice, the aim should not be to memorise:

Medical model = bad. Social model = good.

Professional reasoning requires greater nuance.

Different perspectives may help us understand different aspects of the person’s experience.

The important question is whether our framework:

  • respects the person’s dignity;
  • recognises their rights;
  • takes their lived experience seriously;
  • avoids unnecessary paternalism;
  • recognises environmental and systemic barriers;
  • supports participation;
  • respects autonomy; and
  • does not reduce the person to a diagnosis.

The Human Rights Model of Disability

The Human Rights Model of Disability builds upon important developments associated with disability-rights movements and the social model while explicitly locating disability within a human-rights framework.

It recognises people with disability as rights-holders.

This means that people with disability are not merely:

  • patients;
  • service users;
  • clients;
  • recipients of funding;
  • vulnerable people requiring protection; or
  • people whose needs must be accommodated when convenient.

They are people entitled to dignity, equality, autonomy, participation and the enjoyment of human rights.

The model is closely connected with the principles underlying the CRPD.

For AAOT practice, this means moving beyond simply identifying impairment and providing an intervention.

The practitioner also considers:

What does the person want their life to look like?

What occupations matter to them?

What barriers are restricting their participation?

What rights are implicated?

Whose voice is driving the decision?

What environmental changes are possible?

What supports could enable participation?

What is my professional role in supporting that process?

Disability Does Not Remove Agency

People with disability have historically experienced decisions being made for them because other people believed they knew what was best.

Professionals, families, institutions and governments may have acted with genuinely protective intentions while still restricting people’s autonomy.

A Human Rights Model requires practitioners to take the person’s will, preferences, goals and perspective seriously.

This does not mean abandoning professional responsibility.

An AAOT may need to communicate:

  • risks;
  • professional concerns;
  • limitations of an intervention;
  • alternative options;
  • animal-welfare concerns;
  • evidence;
  • legal or practical limitations; or
  • the need for further assessment.

But professional expertise should support informed decision-making rather than automatically replace it.

This becomes particularly important where the person and professional disagree.

The “Independent” Assistance-Animal Handler

Assistance animals are frequently described as increasing independence.

That may be true.

However, AAOT participants should critically examine what independence means.

Does independence mean:

doing everything without help?

Or might it mean:

having greater control over how, when and with whom assistance is provided?

A person using:

  • an assistance animal;
  • wheelchair;
  • communication device;
  • support worker;
  • personal assistant;
  • family support;
  • technology; or
  • environmental modification

is not necessarily less autonomous because support is involved.

For one person, an assistance animal may reduce reliance upon human support.

For another, an assistance animal may work alongside substantial human support.

For another, an assistance animal may not increase “independence” at all but may increase participation, safety, confidence, choice or occupational opportunity.

An AAOT should avoid imposing a particular cultural or professional ideal of independence upon the person.

The Assistance Animal Is Not the “Cure”

Another risk of an individualised approach is presenting an assistance animal as though it fixes the person’s disability.

An assistance animal may make an enormous difference to someone’s life.

However, the animal does not necessarily remove:

  • inaccessible environments;
  • discrimination;
  • poverty;
  • inadequate housing;
  • inaccessible healthcare;
  • workplace barriers;
  • lack of social support;
  • trauma;
  • transport barriers;
  • inaccessible information;
  • poor public understanding; or
  • systemic disadvantage.

In some circumstances, the presence of an assistance animal may actually expose the person to additional barriers, particularly where organisations or members of the public do not understand assistance-animal access.

An AAOT should therefore avoid treating the animal as a substitute for addressing environmental or systemic problems.

Sometimes both are required:

support the individual AND change the environment.

Assistance Animals as One Possible Intervention

A Human Rights Model also helps prevent assistance animals from being treated as the inevitable solution for people with particular disabilities.

Two people with similar impairments may make completely different choices.

One may strongly prefer an assistance animal.

Another may prefer:

  • technology;
  • environmental modification;
  • human support;
  • mobility training;
  • equipment;
  • psychological intervention;
  • occupational adaptation; or
  • a combination of strategies.

Neither person is necessarily making the “more independent” choice.

A rights-based AAOT approach should support informed choice, rather than beginning with the assumption that obtaining an assistance animal is the desired endpoint.

This is particularly important within a credential devoted to assistance animals.

Because we work in this field, we need to remain alert to our own potential bias toward seeing an assistance animal as the solution.

Sometimes good assistance-animal practice means recommending an assistance animal.

Sometimes it means recommending something else.

Looking Beyond Diagnosis

AAOT assessment should not reduce a person to their diagnosis.

Two people with the same diagnosis can have very different:

  • functional abilities;
  • environments;
  • occupations;
  • support systems;
  • priorities;
  • experiences;
  • preferences;
  • strengths;
  • barriers; and
  • goals.

Conversely, people with different diagnoses may experience similar occupational barriers.

The question:

What diagnosis does this person have?

may therefore be relevant, but it rarely tells you everything you need to know.

Occupational Therapy asks broader questions about function and participation.

Rights-based practice adds questions about autonomy, equality, accessibility and barriers.

Together, these perspectives encourage individualised rather than diagnosis-driven assistance-animal assessment.

Strengths, Not Only Deficits

Professional assessments often require documentation of what a person cannot do.

Funding and eligibility systems can reinforce this deficit focus because people may repeatedly be required to demonstrate incapacity to receive assistance.

AAOT practice should also recognise:

  • strengths;
  • existing coping strategies;
  • knowledge;
  • lived experience;
  • relationships;
  • environmental resources;
  • adaptive skills;
  • successful occupations;
  • personal priorities; and
  • capabilities.

This does not mean minimising impairment or support needs.

It means developing a more complete picture of the person.

An assistance-animal intervention should ideally build upon the person’s existing strengths rather than positioning them as a passive recipient of professional expertise.

Lived Experience Is Expertise

A Human Rights Model requires meaningful recognition of lived experience.

The Occupational Therapist brings professional expertise.

A trainer may bring animal-training expertise.

A veterinarian brings veterinary expertise.

Other professionals may contribute specialist knowledge.

But the person brings expertise about their own life.

They know things that cannot be learned from a clinical assessment alone:

  • what environments they actually encounter;
  • which occupations matter most;
  • what has and has not worked previously;
  • what risks they are willing to accept;
  • how disability affects them day-to-day;
  • how others respond to them;
  • what support feels helpful or intrusive;
  • what they want from an assistance animal; and
  • what kind of life they are trying to build.

Good interdisciplinary practice does not require one form of expertise to defeat another.

The aim is to bring relevant expertise together.

“Vulnerable People”

You will sometimes encounter people with disability described broadly as a vulnerable population.

There may certainly be circumstances in which a person faces increased risk of abuse, exploitation, violence, neglect or disadvantage.

Safeguarding is therefore extremely important.

However, language matters.

If vulnerability is treated as an inherent characteristic of disability, it can unintentionally reinforce paternalism.

Sometimes people are made vulnerable by:

  • dependence upon inaccessible systems;
  • poverty;
  • inadequate support;
  • institutional power;
  • communication barriers;
  • discrimination;
  • isolation;
  • lack of accessible complaints mechanisms;
  • abusive relationships; or
  • systems that do not listen to them.

A rights-based practitioner therefore considers not only:

How vulnerable is this person?

but also:

What is creating or increasing their vulnerability?

and:

How can their rights, agency, safety and access to support be strengthened?

Safeguarding and autonomy should not automatically be treated as opposites.

Dignity of Risk

People without disability routinely make choices involving uncertainty or risk.

They:

  • travel;
  • own animals;
  • change jobs;
  • enter relationships;
  • live alone;
  • participate in sport;
  • make financial decisions;
  • care for children;
  • drive;
  • move house; and
  • choose lifestyles others might not choose.

People with disability should not automatically be expected to live risk-free lives simply because professionals are involved.

The concept sometimes described as dignity of risk reminds practitioners that autonomy includes opportunities to make choices and experience ordinary risks.

However, this does not mean ignoring serious foreseeable harm or abandoning professional responsibilities.

An AAOT may need to distinguish between:

  • ordinary risk;
  • manageable risk;
  • risk that can be reduced through support;
  • uncertainty;
  • professional discomfort; and
  • genuinely unacceptable risk.

The presence of some risk does not automatically justify removing choice.

Equally, invoking autonomy does not automatically make every risk acceptable.

These are professional reasoning questions, not slogans.

When the Animal Changes the Picture

Assistance-animal practice adds another complexity.

The person’s autonomy is extremely important, but decisions may also affect a living animal that cannot participate in decision-making in the same way.

Suppose a person wishes to continue working an assistance dog that is showing signs of pain or significant stress.

A simplistic autonomy argument might be:

It is the handler’s choice.

A simplistic welfare argument might be:

The professional should simply stop them.

AAOT practice requires more sophisticated reasoning.

Questions might include:

  • What is actually happening with the animal?
  • Has veterinary assessment occurred?
  • What behavioural evidence exists?
  • What does the handler understand about the concern?
  • How dependent is the person upon the animal?
  • What would immediate retirement mean for the person’s safety and participation?
  • Can duties be modified?
  • Can temporary alternative supports be introduced?
  • Is rehabilitation possible?
  • Who needs to be involved?
  • What legal or professional responsibilities apply?

Human rights do not erase animal welfare.

Animal welfare does not erase human rights.

The AAOT must learn to consider both.

The Environment as a Legitimate Target of OT Intervention

One of the most practically useful consequences of rights-based disability thinking is recognising that the environment may be the appropriate target of intervention.

For an AAOT, this might include:

  • workplace modification;
  • education of staff;
  • changes to procedures;
  • assistance-animal access planning;
  • seating arrangements;
  • rest areas for the animal;
  • scheduling modifications;
  • accessible documentation;
  • emergency planning;
  • environmental risk reduction;
  • advocacy;
  • policy development; or
  • coordination between organisations.

Sometimes the most useful thing an AAOT can do is not teach the person or animal another skill.

It is to help remove a barrier that should not have been there in the first place.

Rights-Based Practice Is Still Evidence-Informed Practice

A Human Rights Model does not mean abandoning clinical evidence or professional standards.

Rights-based practice should still be:

  • evidence-informed;
  • professionally accountable;
  • ethically reasoned;
  • within scope;
  • appropriately documented;
  • attentive to risk;
  • interdisciplinary where necessary; and
  • responsive to animal welfare.

A person’s right to participate does not require an OT to provide unsupported professional evidence.

Similarly, an OT should not disguise personal preferences as professional evidence.

Where evidence is uncertain, say so.

Where another professional’s expertise is required, seek it.

Where the person disagrees with your conclusion, explain your reasoning respectfully.

Where an environmental barrier can be changed, consider changing it.

Where you realise your own assumptions have influenced your reasoning, be prepared to reconsider them.

Rights-based practice and professional accountability should reinforce rather than replace one another.

What This Means for the AAOT

As you progress through the credential, try to notice the model of disability underlying your own thinking.

When you encounter a problem, ask:

Where have I located the problem?

Is it entirely within the person?

Entirely within the animal?

Entirely within the environment?

Or does it arise through interaction between several factors?

Then consider:

Whose voice have I prioritised?

What does the person want?

What occupations matter to them?

What strengths and resources already exist?

What environmental barriers are present?

Could the environment change instead of—or as well as—the person?

Am I promoting autonomy or unintentionally becoming paternalistic?

Am I treating independence as though it means doing everything without assistance?

Have I assumed an assistance animal is automatically the best intervention because I work in the assistance-animal field?

What are the animal-welfare implications?

What evidence supports my professional position?

What expertise do I need from others?

These questions are central to the professional reasoning expected of an AAOT.

Connecting This Topic to What Comes Next

The Human Rights Model of Disability provides an important bridge between the human-rights material you have already studied and several topics that follow.

In particular, it connects strongly with:

  • Supported Decision-Making Practice Frameworks;
  • NDIS participant rights;
  • neurodivergent-affirming practice;
  • cultural safety;
  • trauma-informed practice;
  • safeguarding;
  • ethical decision-making; and
  • interdisciplinary assistance-animal practice.

A recurring theme throughout these topics will be the difference between supporting a person and taking control away from them.

You will also repeatedly encounter situations where there is no perfect answer.

The aim is not to memorise a single “correct” rights-based response.

The aim is to develop a professional approach that can integrate:

rights + autonomy + occupation + environment + evidence + professional responsibility + interdisciplinary expertise + animal welfare.

Continue This Topic in Your Reflective Workbook

You have now completed the learning material for:

Topic 3 — Human Rights Model of Disability

Please now refer to the corresponding section of your AAOT Foundation Learning Reflective Workbook.

The workbook will ask you to examine how different models of disability can change the way an assistance-animal situation is understood and responded to.

You will be asked to consider issues such as:

  • medical, social and human-rights understandings of disability;
  • where a practitioner locates the “problem”;
  • environmental and systemic barriers;
  • autonomy and paternalism;
  • dignity of risk;
  • the meaning of independence;
  • strengths and lived-experience expertise;
  • whether an assistance animal is necessarily the most appropriate intervention;
  • tensions between human rights and animal welfare; and
  • the role and scope of the AAOT.

The workbook also contains assistance-animal scenarios and professional reasoning activities that allow you to apply these concepts rather than simply describe them.

You may complete the activities now and return to your responses later in the credential. If your thinking changes, retain your earlier reasoning where possible and record what changed, why it changed and what influenced you.

This is particularly valuable in this topic. Your understanding of disability, autonomy and professional power may develop considerably as you progress through AAOT.

The issues and questions you identify may also contribute to later assessments, your Capstone Portfolio and Capstone projects.

Once you have completed or commenced the corresponding workbook activities, continue to Topic 4 — Supported Decision-Making Practice Framework.